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세계의 희귀질환 커뮤니티 앱 시장 보고서(2025년)
Rare Disease Community App Global Market Report 2025
상품코드 : 1855966
리서치사 : The Business Research Company
발행일 : On Demand Report
페이지 정보 : 영문 250 Pages
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한글목차

희귀질환 커뮤니티 앱 시장 규모는 최근 급속히 확대되고 있습니다. 2024년 8억 1,000만 달러로 평가되었고, 2025년에는 9억 2,000만 달러에 달하고, CAGR 13.7%로 성장할 전망됩니다. 이 기간의 성장은 온라인 커뮤니티를 통한 환자 참여 증가, 건강 추적을 위한 모바일 애플리케이션에 대한 의존도 증가, 희귀질환에 대한 교육 자원의 가용성 증가, 환자 보고를 통한 결과 수집의 중요성 증가, 안전한 데이터 공유 플랫폼에 대한 신뢰 증가로 인한 것으로 예측됩니다.

희귀질환 커뮤니티 앱 시장 규모는 향후 수년간 급성장할 것으로 전망됩니다. 2029년에는 CAGR 13.3%로 15억 2,000만 달러로 성장할 것으로 예상됩니다. 예측 기간의 성장 배경으로는 웨어러블 디바이스와 커뮤니티 앱의 통합 증가, 안전한 환자 데이터 관리를 위한 블록체인 채택 확대, 앱 내 다국어 지원에 대한 수요 증가, 앱 플랫폼을 통한 가상 임상시험 모집 확대, 환자 참여를 높이기 위한 게이미피케이션 기능의 등장 등이 있습니다. 예측 기간의 주요 동향으로는 인공지능을 활용한 챗봇 통합, 블록체인을 활용한 데이터 보안 시스템, 클라우드 네이티브 마이크로서비스 아키텍처, 전자 의료 기록(EHR)과의 상호 운용성, 개인화된 환자 통찰력을 실현하는 유전체 데이터 분석의 도입 등이 있습니다.

디지털 헬스 솔루션의 채택 확대가 희귀질환 커뮤니티 앱 시장의 성장을 가속할 것으로 예측됩니다. 디지털 건강 솔루션은 기술, 소프트웨어 및 디지털 도구를 활용하여 의료 서비스 제공, 관리 및 환자 결과를 강화합니다. 이러한 채택의 급증은 이러한 솔루션의 환자 모니터링 기능의 향상에 의한 점이 크고, 건강 데이터의 실시간 추적과 보다 개별화된 케어 관리가 가능하게 됩니다. 디지털 헬스 플랫폼은 가상 케어에 원활한 액세스, 실시간 건강에 대한 통찰력, 개인화된 도구를 제공함으로써 희귀질환 커뮤니티 앱의 사용을 가속화하고 사용자에게 가치를 크게 향상시킵니다. 예를 들어, 2022년 디지털 헬스 소비자 도입 조사에 따르면 2022년 동안 응답자의 80%가 적어도 한 번은 원격 의료를 이용했으며 2021년 72%에서 현저하게 증가하고 있습니다. 이 동향은 희귀질환 커뮤니티 앱 시장의 성장에 기여하고 있습니다.

희귀질환 커뮤니티 앱 시장의 주요 기업은 자연 언어 처리(NLP) 분석과 같은 첨단 기술을 통합하고 있습니다. NLP는 인공지능 알고리즘을 사용하여 인간의 언어 데이터를 이해, 해석, 요약하고 의료 관리에 실행 가능한 인사이트력을 제공합니다. 예를 들어, 2024년 12월 영국의 헬스텍 기업인 Know Rare, Inc.는 희귀질환 환자를 지원하는 HealthStoryAI 앱을 발표했습니다. 이 애플리케이션은 사용자가 일상적인 건강 경험을 기록하고 모니터링 할 수 있도록하고 증상과 건강 패턴을 추적하는 구조화 된 방법을 제공합니다. AI를 활용하면 환자가 보고한 경험을 자동으로 요약하여 장기적인 건강 동향을 밝힙니다. 또한 HealthStoryAI는 개인화된 통찰력을 제공하며 환자와 의료 제공업체 모두 패턴을 파악하고 더 나은 정보를 바탕으로 치료 의사 결정을 내릴 수 있습니다. 이 애플리케이션은 더 나은 자기 관리 및 최적화 된 건강 관리를위한 도구로 희귀질환 커뮤니티를 강화하는 데 도움이 됩니다.

목차

제1장 주요 요약

제2장 시장 특징

제3장 시장 동향과 전략

제4장 시장 : 금리, 인플레이션, 지정학, 무역전쟁과 관세, 그리고 코로나 및 회복이 시장에 미치는 영향을 포함한 거시경제 시나리오

제5장 세계의 성장 분석과 전략 분석 프레임워크

제6장 시장 세분화

제7장 지역별/국가별 분석

제8장 아시아태평양 시장

제9장 중국 시장

제10장 인도 시장

제11장 일본 시장

제12장 호주 시장

제13장 인도네시아 시장

제14장 한국 시장

제15장 서유럽 시장

제16장 영국 시장

제17장 독일 시장

제18장 프랑스 시장

제19장 이탈리아 시장

제20장 스페인 시장

제21장 동유럽 시장

제22장 러시아 시장

제23장 북미 시장

제24장 미국 시장

제25장 캐나다 시장

제26장 남미 시장

제27장 브라질 시장

제28장 중동 시장

제29장 아프리카 시장

제30장 경쟁 구도와 기업 프로파일

제31장 기타 주요 기업 및 혁신 기업

제32장 세계 시장 경쟁 벤치마킹과 대시보드

제33장 주요 인수합병(M&A)

제34장 최근 시장 동향

제35장 시장의 잠재력이 높은 국가, 부문, 전략

제36장 부록

SHW
영문 목차

영문목차

A rare disease community app is a digital platform designed to connect patients, caregivers, and healthcare professionals affected by rare diseases. It provides resources, support networks, and condition-specific information to foster knowledge sharing, emotional support, and active engagement within the rare disease community. The app helps users navigate complex healthcare journeys more effectively and stay informed about disease management, clinical trials, and emerging therapies.

The primary platforms of the rare disease community app include iOS, Android, and web-based applications. iOS refers to apps developed for Apple devices, enabling patients and caregivers to access disease-related resources and community features seamlessly. Deployment modes include cloud-based and on-premises solutions. The application types include patient support, disease management, clinical trial recruitment, information sharing, and others. Key end-users include patients, caregivers, healthcare professionals, researchers, and other stakeholders in rare disease care and advocacy.

Note that the outlook for this market is being affected by rapid changes in trade relations and tariffs globally. The report will be updated prior to delivery to reflect the latest status, including revised forecasts and quantified impact analysis. The report's Recommendations and Conclusions sections will be updated to give strategies for entities dealing with the fast-moving international environment.

The sudden escalation of U.S. tariffs and the consequent trade frictions in spring 2025 are severely impacting the healthcare sector, particularly in the supply of critical medical devices, diagnostic equipment, and pharmaceuticals. Hospitals and healthcare providers are facing higher costs for imported surgical instruments, imaging equipment, and consumables such as syringes and catheters, many of which have limited domestic alternatives. These increased costs are straining healthcare budgets, leading some providers to delay equipment upgrades or pass on expenses to patients. Additionally, tariffs on raw materials and components are disrupting the production of essential drugs and devices, causing supply chain bottlenecks. In response, the industry is diversifying sourcing strategies, boosting local manufacturing where possible, and advocating for tariff exemptions on life-saving medical products.

The rare disease community app market research report is one of a series of new reports from The Business Research Company that provides rare disease community app market statistics, including the rare disease community app industry global market size, regional shares, competitors with the rare disease community app market share, detailed rare disease community app market segments, market trends, and opportunities, and any further data you may need to thrive in the rare disease community app industry. This rare disease community app market research report delivers a complete perspective of everything you need, with an in-depth analysis of the current and future scenarios of the industry.

The rare disease community app market size has grown rapidly in recent years. It will grow from $0.81 billion in 2024 to $0.92 billion in 2025 at a compound annual growth rate (CAGR) of 13.7%. The growth in the historic period can be attributed to increasing patient engagement through online communities, rising reliance on mobile applications for health tracking, growing availability of educational resources for rare diseases, heightened emphasis on collecting patient-reported outcomes, and increased trust in secure data-sharing platforms.

The rare disease community app market size is expected to see rapid growth in the next few years. It will grow to $1.52 billion in 2029 at a compound annual growth rate (CAGR) of 13.3%. The growth in the forecast period can be attributed to the rising integration of wearable devices with community apps, growing adoption of blockchain for secure patient data management, increasing demand for multi-language support within apps, expansion of virtual clinical trial recruitment through app platforms, and the rise of gamification features to enhance patient engagement. Major trends in the forecast period include integration of artificial intelligence-driven chatbots, blockchain-enabled data security systems, cloud-native microservices architecture, interoperability with electronic health records (EHRs), and incorporation of genomic data analytics for personalized patient insights.

The growing adoption of digital health solutions is expected to drive the growth of the rare disease community app market. Digital health solutions involve using technology, software, and digital tools to enhance healthcare delivery, management, and patient outcomes. This surge in adoption is largely due to the improved patient monitoring capabilities of these solutions, which enable real-time tracking of health data and more personalized care management. Digital health platforms are accelerating the use of rare disease community apps by providing seamless access to virtual care, real-time health insights, and personalized tools, which significantly enhance their value for users. For example, a 2022 Digital Health Consumer Adoption Survey by Rock Health found that 80% of respondents had used telemedicine at least once during 2022, a notable increase from 72% in 2021. This trend is contributing to the growth of the rare disease community app market.

Key companies in the rare disease community app market are integrating advanced technologies such as natural language processing (NLP) analytics. NLP uses artificial intelligence algorithms to understand, interpret, and summarize human language data, providing actionable insights for healthcare management. For example, in December 2024, Know Rare, Inc., a UK-based health tech firm, launched the HealthStoryAI app to help individuals with rare diseases. The app allows users to record and monitor their daily health experiences, offering a structured way to track symptoms and health patterns. By leveraging AI, it automatically summarizes patient-reported experiences and highlights health trends over time. HealthStoryAI also provides personalized insights, aiding both patients and healthcare providers in identifying patterns and making better-informed care decisions. The app helps empower the rare disease community with tools for better self-management and optimized healthcare.

In October 2023, PicnicHealth, a U.S.-based health technology company, acquired AllStripes for an undisclosed amount to expand its rare disease data capabilities. This acquisition will strengthen PicnicHealth's patient-centered research and help accelerate the generation of real-world evidence, which is crucial for drug development and regulatory approvals. AllStripes specializes in rare disease data collection and the generation of real-world evidence, complementing PicnicHealth's focus on enhancing healthcare outcomes for rare disease patients.

Major players in the rare disease community app market are Novartis AG, Takeda Pharmaceutical Company Limited, The Mighty Networks Inc., PicnicHealth Inc., Medisafe Inc., FDNA Inc., RareConnect, Carenity SAS, MyHealthTeam Inc., CureDuchenne Inc., Aparito Limited, Healp Inc., ThinkGenetic Inc., Know Rare Inc., OpenApp Limited, Rare Patient Voice LLC, Inspire Inc., Mejo Inc., RareGuru LLC, and Xperiome Ltd.

North America was the largest region in the rare disease community app market in 2024. Asia-Pacific is expected to be the fastest-growing region in the forecast period. The regions covered in rare disease community app report are Asia-Pacific, Western Europe, Eastern Europe, North America, South America, Middle East and Africa.

The countries covered in the rare disease community app market report are Australia, Brazil, China, France, Germany, India, Indonesia, Japan, Russia, South Korea, UK, USA, Canada, Italy, Spain.

The rare disease community app market consists of revenues earned by entities by providing services such as health tracking and symptom monitoring, information and education, and community connection and support. The market value includes the value of related goods sold by the service provider or included within the service offering. Only goods and services traded between entities or sold to end consumers are included.

The market value is defined as the revenues that enterprises gain from the sale of goods and/or services within the specified market and geography through sales, grants, or donations in terms of the currency (in USD unless otherwise specified).

The revenues for a specified geography are consumption values and are revenues generated by organizations in the specified geography within the market, irrespective of where they are produced. It does not include revenues from resales along the supply chain, either further along the supply chain or as part of other products.

Rare Disease Community App Global Market Report 2025 from The Business Research Company provides strategists, marketers and senior management with the critical information they need to assess the market.

This report focuses on rare disease community app market which is experiencing strong growth. The report gives a guide to the trends which will be shaping the market over the next ten years and beyond.

Reasons to Purchase

Where is the largest and fastest growing market for rare disease community app ? How does the market relate to the overall economy, demography and other similar markets? What forces will shape the market going forward, including technological disruption, regulatory shifts, and changing consumer preferences? The rare disease community app market global report from the Business Research Company answers all these questions and many more.

The report covers market characteristics, size and growth, segmentation, regional and country breakdowns, competitive landscape, market shares, trends and strategies for this market. It traces the market's historic and forecast market growth by geography.

The forecasts are made after considering the major factors currently impacting the market. These include the technological advancements such as AI and automation, Russia-Ukraine war, trade tariffs (government-imposed import/export duties), elevated inflation and interest rates.

Scope

Table of Contents

1. Executive Summary

2. Rare Disease Community App Market Characteristics

3. Rare Disease Community App Market Trends And Strategies

4. Rare Disease Community App Market - Macro Economic Scenario Including The Impact Of Interest Rates, Inflation, Geopolitics, Trade Wars and Tariffs, And Covid And Recovery On The Market

5. Global Rare Disease Community App Growth Analysis And Strategic Analysis Framework

6. Rare Disease Community App Market Segmentation

7. Rare Disease Community App Market Regional And Country Analysis

8. Asia-Pacific Rare Disease Community App Market

9. China Rare Disease Community App Market

10. India Rare Disease Community App Market

11. Japan Rare Disease Community App Market

12. Australia Rare Disease Community App Market

13. Indonesia Rare Disease Community App Market

14. South Korea Rare Disease Community App Market

15. Western Europe Rare Disease Community App Market

16. UK Rare Disease Community App Market

17. Germany Rare Disease Community App Market

18. France Rare Disease Community App Market

19. Italy Rare Disease Community App Market

20. Spain Rare Disease Community App Market

21. Eastern Europe Rare Disease Community App Market

22. Russia Rare Disease Community App Market

23. North America Rare Disease Community App Market

24. USA Rare Disease Community App Market

25. Canada Rare Disease Community App Market

26. South America Rare Disease Community App Market

27. Brazil Rare Disease Community App Market

28. Middle East Rare Disease Community App Market

29. Africa Rare Disease Community App Market

30. Rare Disease Community App Market Competitive Landscape And Company Profiles

31. Rare Disease Community App Market Other Major And Innovative Companies

32. Global Rare Disease Community App Market Competitive Benchmarking And Dashboard

33. Key Mergers And Acquisitions In The Rare Disease Community App Market

34. Recent Developments In The Rare Disease Community App Market

35. Rare Disease Community App Market High Potential Countries, Segments and Strategies

36. Appendix

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